with verena :)

Wednesday, September 26, 2012

my modern family

ever sense the first episode aired, my family has been addicted to the show modern family.  we now own every episode on our apple tv and every evening we sit together and watch them.  we've seen all of them multiple times and know them word for word, but they are still funny!!!

and tonight is the season premire!!! only 2 1/2 hours to go!!
can't wait!!

in other news, i have a bad cold and have been home sick from school :P

also homecoming is next week
and 5 doc appointments

the week after is crazy busy as well!!

thats all for today, have to go watch modern family now!!!
<3 hannah

Thursday, September 20, 2012

beads i made!!!

look!!  the wight one is the first i made :)

these beads were sent off to boc and some other people as special gifts <3
i kept one for myself to :)


on the other side, i had OT this week
it was my eval for restarting.  i am unfortynetly a lot weaker that last time i started OT :(  i start weekly therapy next week, they also want me to meat with PT again :( :(  

and they are talking about braces for my wrists 

thats it for this week, next week is quite to
but the week after is crazy!!! lots going on medically, hopefully it will all go well!!!

also could you pray for my grandpa tom, he is in the ICU and very sick

I think thats it, ill try to post more often ( london pictures?)

<3 hannah

Saturday, September 15, 2012



Friday, September 14, 2012

invisible illness awarness week

2. I was diagnosed with it in the year:
3. But I had symptoms since:
4. The biggest adjustment I’ve had to make is:
6. The hardest part about mornings are:
getting out of bed
7. My favorite medical TV show is:
hands down bosten med

8. A gadget I couldn’t live without is:
9. The hardest part about nights are:
all the meds!

10. Each day I take __ pills & vitamins. (No comments, please)
lost count at 27

11. Regarding alternative treatments I:
have tried some... anything to make me better, but i WILL NOT go to a 'witch doctor'

12. If I had to choose between an invisible illness or visible I would choose:
i don't think my illnesses are that invisible, my skin and hair prove that
13. Regarding working and career:
school now, we'll cross the work bridge when we get there!

14. People would be surprised to know:

15. The hardest thing to accept about my new reality has been:
that there are going to be a lot of unanswered questions forever
16. Something I never thought I could do with my illness that I did was;
skiing!!! ENGLAND!
18. Something I really miss doing since I was diagnosed is:
19. It was really hard to have to give up:
arts school (spcpa)
20. A new hobby I have taken up since my diagnosis is:
beading and other arts!
21. If I could have one day of feeling normal again I would:
go on LOTS of roller coasters and eat ICE CREAM! and watch movies and be able to see them :)
22. My illness has taught me:
i can do ANYTHING!
23. Want to know a secret? One thing people say that gets under my skin is:
oh i have that to.
24. But I love it when people:
just sit, not talking, watching tv. preferably doctor who
25. My favorite motto, scripture, quote that gets me through tough times is:
26. When someone is diagnosed I’d like to tell them:
27. Something that has surprised me about living with an illness is:
how many people like me are out there
28. The nicest thing someone did for me when I wasn’t feeling well was:
spend time with me
29. I’m involved with Invisible Illness Week because:sometime people don't 'believe me', they don't understand, there needs to be more awareness
30. The fact that you read this list makes me feel:
HAPPY!!! hopefully you have a better understanding about me :)

Tuesday, September 11, 2012


hey y'all!

i saw dermatology today to talk about my hair loss

the back spot has some GROWTH its all soft and fussy 
she said that it is alopecia and started me on a BUNCH of medication, plus some for other skin stuff as well
the nurse that gave us the scrips says i get the award for the most scrips from one appointment!!

then i start OT again next week
and I see rumatology, adiology, ENT, GI, neurology... in the next month gotta keep healing!!!


in other news...  my uncle finished an ironman triathlon this sunday!!! congrats eric!  
in his next one he has to raise money for a charity and he chose Beads of Courage in honor of me!!! :)  soooo cool!!

i think thats it for today!

<3 hannah

Saturday, September 8, 2012

hey y'all

tomorrow the fan and i are headed to church, then to my gpa's then to lizzys ski thing at buck hill.

then this week i meet with dermatology to talk about my hair loss
we also got a letter with all the test results from my hospital stay, PATHOLOGY LOOKED GOOD! but some of my urin tests were a bit off

ok thats all for today!
<3 hannah

ps this week we start building the monsters for Hannah's Haunted Path 2012!!! I CANT WAIT FOR HALLOWEEN!!! its finely starting to feel like fall!!!

Friday, September 7, 2012

hi y'all!!!

sorry its been so long sense i last updated, we have been busy at the kiresuk house!

I (miraculesly) started being able to keep water down!!! then we tried food and that worked to!!!

i started school on wednesday and so far all is good

i started bowling team to and thats really fun!!  SENIOR YEAR!

so all looks good, i see lots of doctors but thats always how it been :P

<3 hannah