Well it's been awhile, and LOTS has happened.
A few weeks ago, we decided to try IVIG. Again on an inpatient basis. We had the first does overnight Thursday, it went fine. Second does started Friday afternoon and I had an anaflatic reaction and coded. They intubated me up on 6th floor before taking me down to 3 (picu) were I would stay tell Sunday night. Very scary. After a sleep study and a ct (still waiting on results) we were let home Monday.
Since things have gone back to "normal". I do not have much energy, certainly not how I expected to spend my last few weeks of high school... But as dr. K says, illness does not always choose convenient times. Grr. Oh well.
Next thing is we met with gi. I have an empting study on Wednesday, we also ran bloods and stool samples. Fun stuff lol.
Lots of other appointments but I'm tired and won't go into that.Oh hey look I figured out how to add photos
Is that a prom pic?!? YES! It happened a week before the ivig disaster. Soo soo soo good. :)
Ok I'm done now :) gonna go make a s'more over the stove and watch doctor who. Maybe some homework...