hey y'all!!

sorry its been so long for an update...

lets see, first try ended (guess who got all a's)  and thus began college app season- so far i have been accepted to montana state with 2 scoloships- but montana is a loooong way from home and i have my eye set on the u of m twin cities, who i haven't heard from yet.

second tri is in full swing, taking a cooking class and thats fun,  and a hard english class thats a lot of work!!  my teachers this try only update grades once a week or take a long time to get things in the grade book so it looks like my grades are worse than the are... :)

on sunday the 9th we had my grandfathers memorial, but we also had a billiard here in mn so not many people came ( we think is was tom that sent the storm to keep people away :)

sense being CLEARED for alpine skiing, it has been going really well, having lots of fun and just taking it easy...

on the other side of my life
i have had many appointments/ tests related to my hearing loss and we have opted for a personal FM system that i will own (compared to the school owning it).  i wear hearing aid looking ear pieces that actually are just receivers and then i have a phone sized box thing that picks up the person thats wearing it and sends it to my ear pieces, that then put that sound into my head.  we chose this over hearing aids because it only amplifies what i am trying to listen to (teacher, parents at dinner in a restaurant )  it even has a group setting so that when i work in groups of 5 at school i can just put it on a desk and it will amplify only them.
we are on the road to getting them but it looks like jaunary some time (insurance needs to prior approve) and then friday i meet with the vision and hearing teachers at school to work some more accommodations so that school is not so hard.

but other than that stuff my other appointments aren't tell after the first of the year. :)
i also have a cold, no fun.  i am surprised i have been able to focus to type this... i could  not when i tried homework :)


5 DAYS TO CHRISTMAS!  can't wait.  I'm playing tuba at church on christmas eve :) :) :)

happy holidays,
<3 hannah

im backkkkkk!!!!

oh my, were to begin....

as some of you may know, my grandfather passed away 2 weeks ago today.
in all that madness, we took home his massive (160 pound) alsken malamute

get akela (gaps dog) and turbo (our dog) to get along was some feat, but its a lot better now :)  they get along when they want to.

we had a good time at my moms parents house with the large family (38 people i think?)  lots of fun :)

on the other side of my life, saw the eye doctor monday still no driving, starting drops again.  saw neologist last week, same old there.  had a CT (with contrast :P )
tomorrow we se doc sing to see if i can SKI (team starts thursday :) and also more shots!! eek i don't like that!!! LOL
then friday i have a special hearing nerve test and monday ill be fitted for my hearing aids.


ALSO I GOT MY OLYMPIC TEAM BEAD AND ITS SUPER COOL :)

thats all for now,  hopefully not to long tell the next one, but life is crazy so no promises :)

<3 hannah

have y'all seen this :) makes me smile

FRIDAY! YAY!!!

happy almost weekend!!!

today i have 2 appointments and then I'm gonna go sit with dad at his work :)

this weekend i have a MYS concert
i had a school concert last night and that went well :)

thats all for today

<3 hannah

happy election!

hope you all had fun voting, I'm not old enof but next year i can!!!

we have our bowling banquet tonight!!! that will be fun :)

and a band concert tomorrow
and then one on sunday as well.

on the other side of things, my doc still dose not think that i can ski :(


Yup! thats all for today :)

<3 hannah

hey there stranger!

its been awile, pops :)

halloween was sooooooo good.  and in true hannah fashion, i don't have the pics on me so it will be awile  (if you've been following for some time, you know that awile can mean up to 6 months lol)

but here are some london pics....

my cousin seb, waiting for the bikers to come by wile having fun on his bike

verena watching the olympics live!

Me at harry potter studio tours, this was olivanders wand shop, each and every box is hand painted!!! 

baby cousin charlet and aunty tory

USA pride at the olympic bike time trials,  the finnish was hampton court.  the house in the background is were i stayed

OLYMPICS! they went by sooo fast!

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as far as life this week, school has been good.  bowling team just ended so now we just wait for skiing to start :) 

i have some appointments this week, the biggest being tuesday when the doc says if i can ski or not. 

ok! im gonna go back to beading and watching americas next to model.  because it is quality television that is worth my time. not. it s funny though!

<3 hannah

song

voting in COOKIES! a rant on the 2012 election

hi y'all!!!

life is CRAZY!  halloween being the most of it :)  have a looooong list of to dos before the 31st!

we have a 5 day weekend off of school!!! ya!!  I slept tell NOON today!!! :)

i have had a good couple of weeks. although my doc still won't sign the clearance form for skiing and i still can't drive :P

funny store;  on the way back from my music retreat, mom and i stopped at a bakery in red wing were we found that they were having a 'cookie election'  so we got to obama cookies and posted a pic of us with them to Facebook.  then the commenting started (just so we are clear on this, even though i can not vote this election, i have very strong views)

mary- you bought loser cookies...
me- :( well at least we did not buy 'you have to have your baby cause there is no other choose' cookies
me- or college dept cookies
me- or lets build more unnessisary tank cookies
me- or i hate the environment cookies
mom- wow. sounds like hannah has a strong opinion...
mary- wonder where she gets that from
mom- from her dad of course
mary- hannah, you should try the unnecessary tank cookies, they have nuts and chocolate chips, and are great!
mom- mary... dont egg the kid on...
verena- i am quite enjoying myself
misty- way to go hannah! you forgot the 'you cant vote because your 90 and don't hold a drivers license any more' cookie
me- well mary, at least the obama cookies are 47% off
mary- misty, you should try the 'i can vote 10 times because they don't ask for ID' brownies, they are 2 for 1.

this year in MN we are voting on voter registration as well as the marriage reform (VOTE NO!)

sorry.

man i wish i was 18

best election ever




some of my friends are 18 and can vote, but are not going to because 'there one vote won't matter'.
EVRY VOTE MAKES A DIFERENCE. IF YOU DO NOT VOTE, YOU HAVE NO RIGHT TO COMPLANE ABOUT ANYTHING.  this is YOUR chance to make a CHANGE! let your voice be heard, no matter what party you support!

to lighten the mood :)

14 days tell halloween
19 days tell the election!!!


ya! well thats about all at the kiresuk house!!!
we finally got the swamp monster up!! :)  yay  halloween!!!

<3 hannah

well, i have a case of the mondays

hi y'all!!

i had a longgg day

had my eye appointment today,  it was very short.  there has been no change.  UGGG!  no driving.  still no answers and I'm going back in 6 weeks :P

but other than that today was good! had the day off of school,  worked on the halloween path, when to doc (ugh) went to the mall with mom, got choclet, went to the hair lady with mom, had a 2 hour nap there and then got sushi

the only bummer is that tomorrow is school :P  and then clinic, anddddd i need some shots :P

oh well

ok
thats all for today!!! I'm gonna go eat my choclet!

<3 hannah

sunday

hi y'all

this morning i talked with verena and went to the finish line of the metronic marathon!  i had fun but now i don't feel to well so I'm resting at home, mom liz and dad went out for lunch with our running buddies

hoping that i feel better so i can go work on the path and see a movie tonight (hotel traselvana)

tomorrow i go into to see my eye doctor.  we are hoping that my eyes have improved enof so that i can drive again!!!! hoping for the best

its a beady kinda sunday

arnie says hi!

<3 hannah & arnie

kinda a sappy saturday

hi y'all!

today was a long but good day, had orchestra rehearsal, senior pics and now I'm at my gpas house.

this week was fun, homecoming was really good.

on top of homecoming, i had many appointments.  I'm getting hearing aids, have the fitting in november  i also saw ENT, they did a scope (note mom did not tell me this was happening -_-)  but it was ok (they numbed up my nose and then put a camera stick down it- same path as an ng tube, but only to my mouth i got to see my vocal cords!), just a bit uncomfortable.  i have what they though i have and its easy to treat :) VCD/PVFM
i also had OT, looks like i will be in OT tell late december

next week i have my eye doctor, dr sing, reumatology, ot and dr chris

liz and i have monday off of school but i have docs :P

IN EXTREMLY EXSITING NEWS (lol soooo many spelling erors) MY DOCTOR AND I WERE SELECTED TO RECIVE A TEAM BEAD CARRIED BY AN OLYMPIAN!!! i got the email today.  how that worked was i wrote a short nonimation on how my doc shows olyimpic spirt with my care <3 they got reviewed and we were chosen :)

so today has been good!
annnnnnddddd SNL is on tonight- I'm tired and won't be staying up for it but ill watch it tomorrow :)

thats all for today!!
<3 hannah

HOMECOMING WEEK!!!

hi y'all.... it the first week of october witch means one thing...
HOMECOMING!

today was toga tuseday, so fun. so fun.

unfortunetly i had to leave early to go to the audiologist



after lots of tests it was decided that i need hearing aids!
(its ok, they come in pink... lol)

I've been addicted to this video...
gangnam style

:)


have a great day!!
<3 hannah

my modern family

ever sense the first episode aired, my family has been addicted to the show modern family.  we now own every episode on our apple tv and every evening we sit together and watch them.  we've seen all of them multiple times and know them word for word, but they are still funny!!!

and tonight is the season premire!!! only 2 1/2 hours to go!!
can't wait!!


in other news, i have a bad cold and have been home sick from school :P

also homecoming is next week
and 5 doc appointments

the week after is crazy busy as well!!

thats all for today, have to go watch modern family now!!!
<3 hannah

beads i made!!!

look!!  the wight one is the first i made :)

these beads were sent off to boc and some other people as special gifts <3
i kept one for myself to :)

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on the other side, i had OT this week

it was my eval for restarting.  i am unfortynetly a lot weaker that last time i started OT :(  i start weekly therapy next week, they also want me to meat with PT again :( :(  

and they are talking about braces for my wrists 

thats it for this week, next week is quite to

but the week after is crazy!!! lots going on medically, hopefully it will all go well!!!

also could you pray for my grandpa tom, he is in the ICU and very sick

I think thats it, ill try to post more often ( london pictures?)

<3 hannah

invisible illness awarness week

2. I was diagnosed with it in the year:
2011

3. But I had symptoms since:
2009

4. The biggest adjustment I’ve had to make is:
school

6. The hardest part about mornings are:
getting out of bed

7. My favorite medical TV show is:
hands down bosten med

8. A gadget I couldn’t live without is:
laptop!

9. The hardest part about nights are:
all the meds!

10. Each day I take __ pills & vitamins. (No comments, please)
lost count at 27

11. Regarding alternative treatments I:
have tried some... anything to make me better, but i WILL NOT go to a 'witch doctor'

12. If I had to choose between an invisible illness or visible I would choose:
i don't think my illnesses are that invisible, my skin and hair prove that

13. Regarding working and career:
school now, we'll cross the work bridge when we get there!

14. People would be surprised to know:

15. The hardest thing to accept about my new reality has been:
that there are going to be a lot of unanswered questions forever

16. Something I never thought I could do with my illness that I did was;
skiing!!! ENGLAND!

18. Something I really miss doing since I was diagnosed is:
running

19. It was really hard to have to give up:
arts school (spcpa)

20. A new hobby I have taken up since my diagnosis is:
beading and other arts!

21. If I could have one day of feeling normal again I would:
go on LOTS of roller coasters and eat ICE CREAM! and watch movies and be able to see them :)

22. My illness has taught me:
i can do ANYTHING!

23. Want to know a secret? One thing people say that gets under my skin is:
oh i have that to.

24. But I love it when people:
just sit, not talking, watching tv. preferably doctor who

25. My favorite motto, scripture, quote that gets me through tough times is:
NEVER EVER GIVE UP! negu!!

26. When someone is diagnosed I’d like to tell them:
NEGU!

27. Something that has surprised me about living with an illness is:
how many people like me are out there

28. The nicest thing someone did for me when I wasn’t feeling well was:
spend time with me

29. I’m involved with Invisible Illness Week because:sometime people don't 'believe me', they don't understand, there needs to be more awareness

30. The fact that you read this list makes me feel:

HAPPY!!! hopefully you have a better understanding about me :)

hey y'all

tomorrow the fan and i are headed to church, then to my gpa's then to lizzys ski thing at buck hill.

then this week i meet with dermatology to talk about my hair loss
we also got a letter with all the test results from my hospital stay, PATHOLOGY LOOKED GOOD! but some of my urin tests were a bit off

ok thats all for today!
<3 hannah

ps this week we start building the monsters for Hannah's Haunted Path 2012!!! I CANT WAIT FOR HALLOWEEN!!! its finely starting to feel like fall!!!

hi y'all!!!

sorry its been so long sense i last updated, we have been busy at the kiresuk house!

I (miraculesly) started being able to keep water down!!! then we tried food and that worked to!!!

i started school on wednesday and so far all is good

i started bowling team to and thats really fun!!  SENIOR YEAR!



so all looks good, i see lots of doctors but thats always how it been :P

<3 hannah

hospital

hi y'all

sorry for going so long with out an update
if you follow me on Facebook you know that i was in the hospital (I'm home now :)

we went in for my pre op and they were not happy with how much food/water i was keeping down so they sent me to the er
were they pumped me full of fluids (3 liters before i peed!)
the doc decided that i needed my scopes the next day so they put an NG tube in and started the cleanse (i was unable to keep the stuff down)
yesterday i went back in for the scopes... and they all looked good so no answers there :P we are still waiting for pathology
they kept me another night to see if i would feel better (the sleep medicine and i had a battle)

got sent home this evening
still not able to keep any food or water down so if i don't improve by saturday i will have to go back in.

thats just the bones of it.  there was a lot of needles, ng tube drama, vein misses, throwing up etc... current bead count from this 56


still feeling crummy but mom gets home tomorrow so that will be good

thats it for now, more when i have it

<3 hannah

surviving sickness: medical binder

a medical binder is something i think everyone should have, weather perfectly healthy or in and out of the hospital.

for awile, i was managing my medical needs but in these past to months it has become overwhelming and mom has stepped in to help.  the only problem was with 2 of us making appointments and talking to doctors we only had halve the story each
so i have taken some time (or actually lots of time) to put together a binder that we can take to doctors and put up coming appointments in as well as keep track of my medical history

here is what you will need

1 3 ring binder

2 sets of 8 tab binder deviders 

4 packets of the round hole support things

1 3 hole puncher

printer

knowledge of medical history

put the dividers in

on the first tab put EMERGENCY INFORMATION

on the next put CALENDER

then ER/ HOSPITALIZATIONS 

NOTES

MEDICATION

SCANS/TESTS/SURGERIES/PROCEDURES

SCHOOL

HEALTH SUMMARY

the next set is for all your doctors that you see (1 tab per doctor)

behind those you will put the appointment summaries (i get them in the mail from some and i have to ask for others)  keep the most current in front

in the school tab i put my 504 plan (school accommodations)

in the notes section, write down any questions you have for your doctors, then put the answers on them and move them to that doctors tab

put any discharge summaries in the er/hospitalizations tab

in the health summary tab be sure to put a list of family health history as well (they always ask about that) 

and ask your mom about your birth and her pregnesy (they always want to know what meds your mom was on when she was pregnant as well as when you hit milestones) 

as for mine, i like the staple brand binder, it travels around lots and has held together nicely 

be sure to put the donut support things on all your health records, they are the most important papers you will ever have!!!

even if you are not sick now, make one.  you don't know when that status will change and its easier to make one now then when you are sick!!! and if you are sick and you don't have one, but don't have time to put one together message me and i may be able to help (I've been thinking of putting together a kit on etsy that comes pre made all you have to do is add your own history)

i spent a LONG time making charts and pages 

they are all saved and i want to share them!!! message me and i can get them to you!!! 

keep your binder updated!!! 

hope this helped!

<3 hannah

sappy saturday: an overdo update and london wrap up!

hi y'all!  hope your having a happy end to you summer

i made it back from london in one piece, although joe biden stole our gate and we had to wait a hour and a half...
when i got home i was amazed with the amount of packages i had got!!! most were things that i made/ordered, on top of that i got a really nice package from mallory in her blog giveaway :)

on the other side of things i have been very tired (jet lag?) sense getting home.  i have been having fun at the fair, was there for almost 3 hours today 2012 record so far (will beat that next week when we see journey as a fam)

saw 1 doc last week and have 3 this week.  i find it ironic that i have my well child and my pre op in the same appointment
get it
because if your actually a well child
you would never need
and pre op
funny?
no?
ok.

ill get my hearing checked again and we will see if i fail it again, if i do we can get  refered to someone so that i can hear well again :)

i also see the eye doc


we have extended family birthdays tomorrow (mines in there!!!)

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surviving sickness

should be cool
tomorrow will be ether how to set up a medical binder OR covering a bald patch with class



also keep your eyes peeled for london pics :)

thats all!

-hannah

hi!!!

had a nice quiet day!!  only 2 days left here :(  tomorrow we are going to church and monday is dedicated to packing :)

i other news, wile combing my hair today i noticed a lot was coming off,  then 2 very big clumps came out
we were in a time crunch to get to a bbq so i just threw it in a pony
when we got back i combed it out, a lot came out but not as much as before then i found this

i guess it was a lot of hair that was coming out!!!

in this one you can see the thinning in my scalp

we don't know why the hair fell out, but my 'patch' is noticeable (i have a side part)  

when i get home i will see my GP and see what she thinks

ok thats it!

<3 hannah

sappy saturday- winser castle and ambulances

hi y'all

hope you are having a good day!!!

today started out on a good foot, we all got up had food and loaded the car for a fun day at the castle.
we parked about 4 streets away and waited 20 min to get passes in (witch we did not end up getting...)

...because i suddlenly lost control of my face (talking and swallowing) then the rest of me, and long story short because i am tired, i ended up in an ambulance, er and finally a room to myself.
i was discharged and am at home now :)

very frustrating and very embarising :(

also very scary as this had never happened
they are not sure what did happen.  at first they were gonna run a bunch of tests, but then i got a bit better and they said it could wait tell i get back home to the states. (yay)

they had called a few specialists (from oxford, only the best for me :)  and i have there number if anything else happens before i get home

on the plus side i don't think we will be charged for todays events as there is public health care here and they did not take much info from me :)

when they were gonna run the blood tests they gave me a numbing cream so i wouldn't feel the stick (i don't think they knew i get blood sticks a lot lol) i love those creams for IVs.  the cream is very effective as i still can't feel my arm (haha)  but it also burnt my skin its all red and uncomfortable

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on the other side my 2 year old cousin LOVED seeing the ambulance and had lots of fun playing with the toys at the hospital :)

always makes me smile
ok im gonna go to bed now

i think ill have a better day tomorrow...
<3 hannah