laaaaaaaazzzzzzyyyyyy saturday AND CAT PHOTO BOMB!

gonna work on gold award, go for a run down stairs and nothing else
:)

ok, cat pictures

there are some duplicates in there- YOUR WELCOME!!!



<3 hannah

ps song (for jessi)
song

eye-pocalips

have an eye appointment next tuseday- vision suddenly got VERY worse and blurry and double.

also have my neurology appointment on monday- going over scan results!!!

bla





AND WE BOUGHT THE ENGLAND TICKETS I LEAVE JULY 28TH AND COME BACK THE 18TH.

also my uncles house in england, the rode out front is the bicycle track for the olympics on the 30th.  
and verena has her ticket

so thats gonna happen

and the harry potter studio tour is now open so that will happen to


ya!



beads- wednesday 1 blue 1 rainbow, thursday 1 blue 1 rainbow, friday 1 blue 1 rainbow.


<3 hannah

second post tonight!

wellllll as promised...

this afternoon was the last Minnesota youth symphonies concert of the season.

it. was. amazing.

also i played sousaphone. on orchestra hall stage. go ahead. be jealous.
(i play the tuba- against my bodes will- if you did not know that :)


anyway. the low brass section and i grew close this year.  most weeks i brought my beads to rehearsal to show them all the new ones i had earned.
we had some great times, including spit drawings on the floor... and some not-so-great-times were i set up for a party and no one came...

anyways!  they suprized me with a gift at the concert today!!!
there is a lovely card... from the front "we the trombones, have enjoyed all to the crazy, unique, insane, extraordinary, and beautify memories.  And man, have remade some MONSTEROUS sounds! "

awwwwww

and they gave me a bead

that was the gift part.  

meaning of this post; beads are awesome.  tuba is amazing. trombone players rock.  PEOPLE ARE SO NICE.  i have great friends.  (i needed to be reminded about that today. (that story is a another blog post)

song of the night (we played this today!) i suggest skiping to 314 to hear the brass take over the world (or just listen to the whole thing) man, this is a very long link!

actually skip to 656 to

haha the conducter kinda looks like a zombie from walking dead... :)

<3 hannah

1 of 2 posts this evening...

hello all- this is a multi post nigh! lucky you!

first, i am amazed by all the people who follow my blog- got one of those countie type things (look to your right- up a little... yup! its the flowers pots with numbers!)

second beads from friday blue 1 rainbow 1

third- i posted a few days ago that i may on have one doc appointment this week... NOPE! sigh.. whatever!

lastly (for this post at least...) here is a web cam history of my beads...

there, now I'm off to write the next post...

<3 hannah

mothers day

mo Glass Bead mo110322a33

Glass floral motif bead measures 38mm x 19mm, 3/32" hole by Melissa Osten.

::Bead Only $27.00 (1 in stock)Turn Into Pendant $33.00Qty:    


this is the most perfect bead for my mom.  last mothers day, we were in the hospital


saving up!


<3 hannah

push up

no... i can't do a push up
my neurology follow up got pushed up to monday morning.

<3 hannah

FRIDAY IS TOMORROW!

and that makes me very happy.

plan for tomorrow
1. school :(
2. clinic :/
3. run D:
4. PARTY CAUSE ITS THE WEEKEND!... no school or doctors.

it looks like next week i maybe only have 1 appointment...
have to call tomorrow for jaw- i know i missed pt.  forgive me i was at home post seizure.


wait wait wait...

also fun fact; did you know that act of courage beads only stay at head quarters for 48 hours before being  sent out to kiddos?



<3 hannah

song

50th post!!!

and a sad one at that, Gavin DeGraw will move no further in DWTS :(

but on anther note... there is hints of him touring to different hospitals... hmmm



click here to go to the DWTS BOC event Facebook page to see lots of kids that are SUPER brave!

clinic tomorrow!

<3 hannah

sorry

no updates for a wile.  I've been trying to catch up on sleep from the EEG.

we will get the results from the scans on the 30th

have my follow up PT next friday.


that is all

<3 hannah

because i forgot yesterday...

MRI was in a weird truck thingy.  odd.

there was only one guy


mom said it was short but it felt like forever-there were mirrors so you could see out of the tube, fat chance without glasses on!

but the guy did't pull me out of the tube in a panic cause my brain was missing or something (happened with leg)  so thats good.  the radiologist will look over the scan this morning :)

beads (TOTAL)
2 blue, 1 black, 2 light green

I DID IT

stayed up the whole night! and we are off to have an EEG :P

hannahs guid to staying up all night (WARNING written with no sleep!)
1. watch dancing with the stars
2. go out for dinner at perkins at 9
3. make friendship bracelets with mom
4. watch doctor who
5. hot tube with dad
6. watch harry potter
7. repeat step 5
8. repeat step 6
9. update blog
10. leave for EEG


*note, author does not assume any responsibility for tears from headache or lack of sleep


<3 hannah

hannah, the queen of needle pokes

normaly a blood draw is no big deal.  but today the did one in the same arm as the one last week.  bruise still there.
if feels like someone took out the muscle out of my arm- tied them into nots- then put them back in.

ahfjkahfahfaoshdfaoshfashf. owie.

end complaining

but the day is not over yet... in fact my day won't end as i will be staying up all night in prep for the EEG tomorrow.

ok now for real end complaining.



mir is tonight at 7PM not AM as we thought.


beads total (so far today- will update later)
1 blue, 1 light green (pft), 1 black (owie)





happy afternoon!

ill up date again!!!

<3 hannah

change of plans

we had MRI time wrong- its 7 in the evening
also have a visit to the phulmnologist this afternoon w/ PFT. YAY video games!!!

a lovely sunday

went to church, came home, did homework and watching old doctor who

head hurts but thats not new (MRI tomorrow)


WHAT IF THEY NEED TO DO IT WITH CONTRAST.
i can't see why
i hate needles
and tubes
and needles attached to tubes.
needle = black bead
mri = light green
clinic = blue

we got this.

got so much homework done.  Yay!!

sooo tired, have to get up early = early to bed

the sun will come out tomorrow, bet your bottom dollar that tomorrow, they'll be light!

tomorrow, tomorrow i love ya tomorrow.

<3 hannah

song of the night (my mama sings this to me :)

tired!

hello all :)

had a good day :)

went to rehearsal- did't feel to fantastic ( still don't)


had a nice dinner with dad


GAVIN CONCERT LAST NIGHT WAS AMAZING







church tomorrow.

hightend scanziety for mondays mri.


good night!
hannah

i felt the world needed some extra cute today :)

JENNY! (song of the night)

TOMORROW

gavin concert.


so exsited


can not think (or spell)


yay!!!

i also have clinic tomorrow.

we watched gostbusters today.  i love that movie :)

who ya gonna call?


<3 hannah

schooooooool

working hard to make the grade.

its hard.

thats all

interesting

first MY HEAD HURTS
look i found colors and other fun things :)


so i anatomy we learned all about bone structure and function, it was cool to compare my x rays to 'normal' scans


we also learned about joints- i was very interested in the jaw joint because mine has gone crazy (well at least a tmj disorder does not effect me on a daily basis- oh wait, no gum, and a mouth that is locked every morning)
-I hate whining, there are so many people out there who would love to trade shoes with me.  but it still is problematic when doctors yell at me about not eating breakfast I'm sorry i could not open my mouth to eat food.


but i have self care stuff that i do in the morning to free my jaw up ( its mostly the right side that has problems- so if you gently move it around the right joint it works)

it was neat to compare drawings of 'normal' joints to mine- you can see were the cartilage is all messed up.

my mri got moved from sunday to monday




also working to pick out necklaces for gavin concert.
i think i have them chosen
1. the pink necklace with cats and hannah
2. the necklace that has the gavin bead on it
3. my rainbow necklace with purple heart :)
4. new necklace with penguin bead







can.not.wait.for.friday.


:O) :) :0) song

Neurology appointment

just got back from.  went well, don't know anything tell test results come in.

tests are scheduled MRI SUNDAY 415PM, EEG TUSEDAY 7AM

for the eeg i have to stay awake all night so that i am sleep deprived. ideas for staying awake are now being taken.

beads 1 blue, 1 fish.

<3 hannah

bad day RANT WARNING!

made it the whole day of school, but i sat on gum and it got stuck to my pants.

mom texted asking about my day at school, i told her that i had a headache, instead of giving a tip or sympathy she told me is spelt headache wrong.

i was going to see my cousins track meet but i feel like crap and liz is mean.


uggg

and worried about tomorrow (new doctor)

ALSO I WANT TO BE ABLE TO DRIVE AGAIN.  IT SEEMS SOOO UNFAIR THAT IVE ONLY HAD MY LICENCE FOR 5 MONTHS AND I ALREADY CANT USE IT,  (other kids get theres taken away because the sped or ran a red light... I DID NOT DO ANY THING WRONG- well my brain did...)

frustrated+angry+sad+worried= STRESS= TEARS



end rant
song


<3 hannah

ps i am tempted to order a special bead for this, it is mostly medical related stress.  idk. nap

PACKAGES!!!

I got 3 packages today!!! YEAH!!

1. normal order of beads from BOC (now working on my 19th strand :0)

2. GAVIN BEAD!!!

(note says "be strong hannah, love the video)

Gavin. Degraw. Saw. my. video... i have no words.

3. a bead that was a surprise, CJ and her family saw my video and gifted a lovely purple heart bead

as always, i am amazed by the kindness of strangers

all i can say is thank you, to everyone at boc, or who have sent my special beads, or those who keep me in there prayers.

<3 hannah

haha :) song of the night

happy easter!

church bright and early, played both services!!!

found my easter basket, took a long time :)

going to dads family soon, just 6 of us compared to 40 some people yesterday



mom made gluten casein free cupcakes, pudding, potatos, and more... gonna be soooo full tonight

head hurts!
blaa

<3 hannah

saterday

bring a friend day at rehearsal- i brought liz, she said that she had fun :)

left early my head hurts!!! :(

slept for awile, then it was off for easter celebration with moms BIG family.  headache got worse :P had fun though :)

forgot from yesterday beads = 1 blue and 1 rainbow (hard earned rainbow!!!)

gonna try and stay up for snl- probably not a good idea as i have to be at church at 745 tomorrow.

im gonna bet 3 hours to find my easter basket. dad will probably help.



ugg. i. do. not. want. to. go. to. school. on. monday.


the longer i go without a seizure the more of a change is was a 1 time deal!!! fingers crossed!


nope, monday still looks bad.

hope


<3 hannah

sleep, worry, pray

sleep is all that i have been doing.

worry... what if have another one, will anyone be around to help, what if something is wrong?

pray needs no explanation

hope

hope y'all had a good friday
funny?

<3 hannah

on the road to recovery

made it to school for the whole day!!
and i got in to the neurologist for next Wednesday at 745

YAY!

tired. headache. dizzy.

song of the night

<3 hannah

clinic

well, the clinic was able to get me in fast.

had a lab draw and a referral to neurology...

called them and the soonest appointment is JULY 10TH

(my birthday)
nOOOOOoooo
i can't drive tell i see this doctor.

noooOOOOOOOO


not fair.

plus my head and arm hurts

uggggggggg

bad day. very bad day.

:(

beads= blue 1, red 1, aqua 1, orange 1, black 1, gray 1
plus the ones form earlier

<3 hannah

ps- mom is gonna call a few other clinics to see if i can get in earlier

also seizures are scary.

i call them the shaky dance

thats all

seizures? what happened to my clean bill of health?!?

well.....
had a fun morning at school ( sarcasm )

my heart raced, told my teacher something was wrong

woke up with headache on floor.


friend said i tensed up, fell, and started shaking, then stopped, then woke up.

unfortunately this happened right before passing time.
the worst wheelchair ride I've ever had - through crowed of open mouthed, inconsiderate teenager. wonderful.

thank you body for your continued assholeness.

beads= magenta (i think this was a unexpected enof event to earn a magenta for) and 1 glass ( for that HORRID wheelchair ride - only it has to be the coolest bead ever, because that was awful. it should be like tree of gondor or tardis cool)




oh and the best part - if these continue, drivers license gets taken away. like forever. i not aloud to drive this week. :(

blaa


end rant



<3 hannah

sick. tired. dizzy. headake.

blaaaaaa


on a plus side, my gavin bead was shipped.

can't move without feeling faint.
this is a problem.

another plus side- i watched game of thrones.  addicted


england, england, england - why is it not july!?!

also doctor who comes out in agueust (feel like crap-cant remember how to speel, or think for that matter...)
AND lord of the rings mathathon
and doctor who

i am such a geek
song of the night

also it seems as if the misecotos have come back with a vengeance
and i am coverd in bruses


well this post needs to end because its going nowhere

<3 hannah

i have a clean room!

its weird...
usually, after an er trip or a surgery or hospital admission, my family cleans my room for me (sort of like a 'sorry your body hates you' kind of thing) it worked well when i had lots of them, but now that things have slowed down, my room is a disaster!

so i cleaned it.  actually, most of my room is under my bed and desk.  (shh don't tell mom!!!)
lol

YA holy week!!! love palm sunday, i am ready for the striping of the alter on thursday but i HATE friday.  although in the end, it was for the better i guess.  i just feel as humans we strive to be perfect, and do not want to accsept that we are not.
i am playing tuba at both easter services at our church! :)

in youth group we talked about white privilege. I feel like we could not get a full perspective because our church does not have a single african american member, witch is odd because our church is located in a very diverse community (minneapolis- dinky town)

what else did i do today...

i restrung some of my beads, will post pictures later as the beads are up stairs and i am lazy :)

song of the night

<3 hannah

so happy

thats all

I'm just happy :)

<3 hannah

purple day :D

my year in pictures :)

good day
beads = 3 blue, 3 rainbow, 2 white, 4 light green, 1 PURPLE HEART

fitting for today :)
better one i think :)


<3 hannah

HAPPY BIRTHDAY LIZ!

my sis liz turned 12 today :)

and i have a new hair cut and new glasses :)

sups says my beads will be here tomorrow afternoon, witch is a bummer, i was hoping they would get here today so i could bring them to the hospital tomorrow :( oh well... ill just bring them monday when I'm there... lol

beads = 1 blue, 2 light green, 1 bumpy... tomorrow will be a heavy bead day (PURPLE HEART!)... watch out for pictures

song of the afternoon... seems fitting for today :)

<3 hannah


ps... do you guys listen to the songs i post? just wondering :)

had a good day :)

song of the night

got a hair cut, AND I ORDERED TICKETS TO SEE GAVIN
so existed.

gavin<3


<3 hannah

beads = 0

so. tired. can't. even. type.

what an amazing day.

so fun
we did well at the band contest (judges said the tubas were 'superb')

then with the gavin video, and his tour AND him staying for another week on dwts :)

got an email from usps, my beads are coming (purple heart!)


song of the night
from the greatest musical ever.

now I'm off to bed!

<3 hannah

OMGOSH!

greatest. tour. ever.

i have to go.
end of story
the world will end if cannot go.

that is all.




<3 hannah

TEAM GAVIN!!!

gavin's dance

my video to gavin and entry to receive one of his team beads
annnnnnnddddd..... I got one!!! YAY! i have loved his music for a wile now, I AM SO EXCITED TO GET THIS BEAD!

so cool

can't even think
song of the night


as you can tell, i have figured out how to link things onto this blog :)

school is back into full swing- have a field trip to a band contest tomorrow, then marathon appointments on friday (+ purple heart!!!)

we are going to get the party hats tomorrow for the people at school :)

happy day.

<3 hannah

week in preview

monday - nothin much just A WHOLE DAY OF SCHOOL :)/:(
tuesday - field trip with the band
wednesday - ANOTHER FULL DAY OF SCHOOL! (glasses should be in)
thursday - AND AGIAN

FRIDAY - DONE !!!!!!!!!!!!!!!!!!!!!! PURPLE HEART FIRDAY! YAYYYYY! (3 doc visits)

beads = 0

hi gavin and beads of courage !

song of the night

my sis did not know who in sync was.  we listened to this all day.  look at jt's hair... and the dancing! it sounded better when i was 8...


well it aint no lie bye bye bye!
<3 hannah

WEEKEND

5 days, 13 hours tell i get my purple heart!!! YA!
sooo ready
my friends at school are going to were pink party hat that state "Hannah is DONE"

sooo existed

worked at the girl scout carnival tonight
tomorrow have orchestra rehearsal :)

got a package from boc with the beads i got for posting st Patty's day pictures of my beads :)


beads = 0 (well the ones i got in the package, but they were not hard to earn :)

http://www.youtube.com/watch?v=ebsYCJinxKU



<3 hannah

ps - what do ya'll think of the song a day idea?

new idea

i am going to post a song that is stuck in my head ever night (i cannot get this out of my head!),

just copy and paste into your window.

http://www.youtube.com/watch?v=7k-VAlIPzKg

bring it on friday

beads = 3 blue, 1 rainbow


BED
<3 hannah

unwanted

today at the u of m after my jaw visit, i was on the way back to my car and my legs gave out - and the guy at the front desk gave my a ride to the er

beads = blue 1, magenta 1, light green 5, pink 2, purple 1, white 2

tomorrow i have pt

im gonna nap now

<3 hannah

opps! forgot!

beads = purple 6, white 6, bumpy 1, blue 1.

eyes

had my 3 hour eye appointment today.  some fun double vision and a prescription changes (left eye jumped from -2.5 to -4.75!)

they also are giving me bifocals instead of the regular glasses and a pair of reading glasses - ya! (before i wasn't able to because i need prysims in my reading glasses and not in the others, but now i need them in both!)
they wanted me to get ones without lines - said that people will give me weird looks.  i needed to remind them that i spent 3 months using a walker (haha).

so i asked them what the cost difference was between lines and no lines, $200.

no. no. no.  its just 2 lines - no problem

<3 hannah

my week just got crazy

original plan- Monday jaw visits, Tuesday eye visit, Friday 2 therapies

new plan- Monday done! Tuesday same, Wednesday more jaw visit, Thursday pt, Friday therapies.

uggg! I GUESS THEY DON'T CARE ABOUT SCHOOL.

monday is over!

and what a monday it was!
first i got out of bed - that was a big deal - I'm tired!
then i went to school, new tri, new classes, new people. blaaa.
then i left school for the clinic

beads = blue 1, rainbow 1, light  green 3.  all planed
what wasn't planed was that i have to continue jaw pt. NOOOO. well its not that big of a deal but thats hard to manage - they don't give you the same time or day each week and my gal is only there on monday and tuesday :P
aww well easy pt - we do lots of massage and heat packs (aka naps)
not to be confused with normal pt, witch is lots of work

then when i got back from the clinic i went to get my goal award project approved at the counsel
then i went on a walk with mom :)




now its raining and its getting cooler - it feels like august - liz still had ski practice today (what?!?) 70 degree ski practice lol


tomorrow i head to downtown st paul for an eye check up - its been almost 5 years on the dot from my last surgery, so it is time :( blaaa maybe this time i am eligible for eye therapy ( not that i need anymore therapy appointments lol)
anyway- i HATE driving in downtown!
butttttt... the clinic is across the street from the candy store... hmmm :)

<3 hannah

home sweet home!

we made it!

and my joy jar came, so neat! has a little stuffed unicorn and stickers and a notebook and pen and silly putty and chopstick and hand sanitizer and a yoyo! not sure what to name my unicorn - also please ignore my face - i have been in the car for 20 hours!

we stopped for lunch in north plate nabraska and later that day they had a tornado! wow!

beads = 0 (tomorrow i will earn at least 3 - and more than that on tuesday, then more on friday!!!)
hopfuly no "surprise" beads this week (er, unexpected tests...)

new tri tomorrow at school - won't be there for the whole day though... bummer (haha not - note i did try to get appointments as late as possible to miss as little school as possible!)


http://www.youtube.com/watch?v=zlA5IDnpGhc

<3 hannah

sick day

last day to ski in colorado and i stayed back sick :( feeling a little better now, still have a sore throaght and a bad headache

liz did good today! she final got hardware on the last run of the last day :) 10th is not that bad out of 80 races, most of them older than her!

the picture is of me and liz with our "medals"

beads = 0 :)

<3 hannah

last night in colorado

tomorrow is the salum race and then we take off - headed to denver to spend the night - then on sunday we book it back to minnesota to make it in time to school!

not feeling so well today, sore throat and a head ake.  I had a hard time getting up to ski today!
it was worth it, first tracks

liz did well in her races today she finished 15th and 16th :)


beads = 0 although there should be a bead for not feeling well on vacation!

<3 hannah

im chronically ill and i know it

to the beat of "I'm sexy and i know it"

ahh doc look at that splint x3
i-i had it fitted!
ahh doc look at that splint x3
i-i had it fitted!

when I walk into the rehab department this is what i see
my doctors all stop and smile at me
I did my exercises and i took all my meds
I'm chronically ill and i know it


besides my new song being FANTASTIC some other stuff happened today as well,
1. Liz fell in the race today (she's OK - bit sad though)
2. dad and I locked the keys in the car (oops!)
3. had a fun dinner at this steak place - had to cook your own food
4. looked up hot air balloon rides - $200 = not gonna happen
5. skied with uncle Brian

out of order (5,1,4,3,2) that's how it should be

oh and mom, Brian and I scared grandma good today!

beads = 0 :) ya vacation!

<3 hannah

skiing skiing and more skiing!!!

still having a blast out here in steamboat

liz had her second super g training run today- she help back (her coach called her a chicken :)
there getting ready to head out for slaum practice at 3


dad and I when up to the chutes and found some nice snow and bumps... and someone drivers license

I'm going to go take a nap!

<3 hannah

opps...

bead total is 1122


thats a lot :)

Colorado

beads earned today = 0 :)  total = 1044!!!
enjoying the lovely skiing out here in colorado :)

very sunny and good skiing
moms nee is bugging her so thats a bummer- she still is skiing though

my leg has been quite painful,  but I'm hanging in there- it is so freeing to be on skis - lots easier than walking- my pt does not get it but oh well :)

my joy jar will be there when i get back :) hopefully my boc beads as well- after this order i will have 1044!!!  that is a medical experience for each bead!


liz had 1 super g training run today (for thoughts who don't know we are in colorado for the jounior olympics!!!)
she said she was nerves- but i would be concerned if she wasn't (haha)
she also was able to get about 15 salum runs in- buuuuuut she did not finish anyone - she was skiing all out (it sounds like tasha set a challenging course today)

this week is a dream - no school (first time in 2 years! from summer school to pseo classes to make up work...) and NO medical appointments - this is the life
-reality will hit hard monday morning with school and a doctor visit- same thing on tuseday... then 2 appointments on friday...   i also have to call to set up with dr frankenstine :( :(

unkle Brian is coming in tomorrow! existed to go skiing with him :)


hope your spring break is going well
<3 hannah